Tuesday, September 30, 2014

NICU Day 9

Today was my first day back at work.  It went well, though I'm not sure how I'm going to balance work, home and hospital.  I got to the hospital just before 5pm and didn't leave until right at 8.

Today's hospital visit was pretty intense.  I got to change her diaper and take her temperature as well as the Kangaroo Care for about an hour.  Previously, I'd been treating Kanagroo care as something that was done on me, where I'd hold still, they'd place her on me and then I'd just hold REALLY still while they adjusted her as needed.  Today, they had me re-positioning her myself.  She's very tiny and I find touching her and manipulating her daunting.  I clearly stated my concerns with being left alone with Baby Girl and Rhonda was really awesome about it.  She was careful to make sure I knew I could get help, they made sure I had a call button I could push and she made sure I wasn't left alone when the alarms went off.  Baby Girl had a couple brady spells and some apnea spells during our time together, but overall, they said it went very well.  Also, she had a really big poop... which may have been at least some of her bradys etc.

Height: 13 inches (33 cm)
Weight: up 10 grams!
Pump Total: 611ml - 20.36 oz
feedings bumped to 7 ml
CPAP 5 - 21% - 27%
Kangaroo Care - 1 hour
Dr Carr called with an update
Phototherapy is on
Day Nurse: Rhonda
Night Nurse: Megan

Monday, September 29, 2014

NICU Day 8

The news of the day is Riley's left eye has opened.   She's started forgetting to breathe a little more often, they may need to bump her CPAP a bit.

I thought I might have a hint of a sore throat this morning, so I did not go visit.  Tomorrow, I'm planning to at least pick up more bottles and labels (If I'm still not displaying any symptoms of illness).  I plan to be at work tomorrow.  I have a meeting at 9am, wish me luck with that.

Height: 12 3/4 inches (32.385)
Weight: 1lb 10oz (still)
Pump Total: 560ml - 18.6 oz
feedings bumped to 5 ml, 6ml in the morning
CPAP 5 - 21% or so O2 - 12 alarms or so in 24, with 3 interventions (as of 10am or so)
Dr Carr called with an update
Phototherapy is off
Day Nurse: Lori
Night Nurse: Megan

Sunday, September 28, 2014

NICU Day 7

I started getting around early this morning with the hopes of being at the hospital by 11.  I wanted to get a flu shot today as I'd finally found an option with the quadrivalent, preservative free shot - If you want the better coverage of a 4 virus shot, go to Walgreens and ask for it by name :)

Unfortunately, there was some paper work issues getting my flu shot setup, so it took just this side of forever for me to actually get the shot.

I finally made it to the NICU about 11:45.  It seems like her nurse is never there when I get in the room.  I'm so used to one on one nursing care, that it is disconcerting to have such an absence in that environment. She was desatting a bit when I arrived, she does that a lot... it scares me.  I was relieved when her nurse arrived to help.

I got to meet her nurse, Rachel and she was very nice.  I wore a mask again and I think she might think I'm crazy.  I'm going to stop bringing milk in and start storing it here. I've created a lot of little bottles.  On an up note, her next feeding she's up to 3ml, so they are beginning to ramp her up to her "full feed" of 14 ml every 3 hours (if I remember right).  They are going to fortify my breastmilk with human milk fortifier (a type of formula).  I'm working hard to be OK with that.  This is the reason formula was invented.  She'll need the extra nutrients... This isn't what I dreamed, but it is what I have to work with.

I pumped enough fresh to last for a little while and a bit more went into the freezer.    Then I got to hold her for a couple of hours.  By which I mean she was carefully and quickly arranged on my bareskin, braced in place and covered with a couple of warm towels.  I then sit very still and shift between trying not to bother her and reciting children's stories.  Every once in a while, she high sats, which gets her oxygen turned down (yay!) then, occasionally, she also desats, and sometimes tosses in bradycardia.  Watching all the numbers drop is terrifying.  The fact that it is no big deal to the nurses is also terrifying.  I'm watching my baby's oxygen drop and no one comes running. Then I'm sitting there, alone and her heart starts dropping too... it is terrifying.  I wonder if it is too early for Kangaroo care.  There has to be a less scary way to do this...

Right at the end, before we put her back in her incubator, she started crying.  She's a loud, loud tiny girl.  She wanted everyone to know she wasn't happy.  We got her snuggled back into her space lying on her side, which seemed to help.

On an up note, I get a FLOOD of feel good hormones while I'm snuggled up with her.  It is amazing. So far, I've crashed back down off of those hormones a few hours later, which is pretty painful.

The doctor/NP who saw Baby Girl never did call with an update today.

Height: 12 3/4 inches (32.385)
Weight: 1lb 9oz (down 1 oz) 708.73 grams
Pump Total: 513 ml (17.1 oz)
feedings bumped to 3ml, the second to the last 2ml feeding had a .4 residual, not bad...
Pooped at 8pm-ish
Kangaroo Care - 1.5 hours
CPAP 5 - 24% or so O2
Acidity stable
Phototherapy is off
Day Nurse: Rachel
Night Nurse: Megan